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Planning for your children's future after you're gone is a necessary and
sometimes difficult task. For parents of disabled children, there is an even
more important need to make sure that their plans will properly provide for
their children. Careful planning can ensure that a special needs child has all
the basic necessities - and more.
It is easy to put off the planning that should be done to care for a
disabled or special needs child. Unfortunately, not planning is the worst thing
a parent can do for their child. Regardless of whether you leave a will or
whether your estate must go through probate, not planning can cause whatever
inheritance you intended to leave for your child to disappear due to estate
taxes.
If your child cannot live alone, he or she may need to be cared for by a
state institution. The problems with leaving your inheritance directly to your
child are evident when you consider that most states can enforce liability for
the cost of state funded institutional services against the disabled person's
assets.
To avoid this problem, some parents leave money to a sibling specifically
for the care of the disabled child. This plan, however, has some significant
difficulties. The sibling may initially be willing to help, but after they have
had to sacrifice their own family's needs for those of their disabled sibling,
they may abandon some of the responsibilities. If the sibling goes through
divorce or bankruptcy, or if the funds intended to provide for the disabled
sibling are simply not enough, the sibling may incur their own financial
struggle in attempt to provide for their brother or sister.
A discretionary trust fund or a living trust may be a solution for many
parents facing planning for the future well being of their special needs child.
If a skilled attorney properly establishes the trust, the trust will not
disqualify the child from receipt of Medicare or Supplemental Security. As with
all trusts, the trustee has the power to use the trust's income and principal
as needed, but only for supplementing the assistance provided by public
programs. In this way, the child receives the basic care provided by the social
program, in addition to the extra items needed that will improve their quality
of life. For example, the trust's funds can provide for travel expenses, extra
clothing, and special medical care that the disabled child would not otherwise
receive. Plus, the assets in the trust can accumulate, maximizing the funds
available in the trust for future distribution to the disabled child or other
heirs.
Some families may be lucky enough to just rearrange their assets in order to
fund the trust. Others, however, may decide to fund the trust with a permanent
life insurance policy. A second-to-die policy, with a slightly lower premium
than a traditional permanent life insurance policy, may fit the needs for those
wanting to provide for a special needs child. Because the policy is not payable
until the second spouse dies, the funds to care for the child will be there
precisely when they are needed. Whatever you choose, make sure you plan well in
advance for the future of a special needs child. You will have peace of mind
knowing that your child will be cared for as well as if you were there,
providing care yourself.
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